Being a Champion: How to Advocate for a Patient in a Hospital or Nursing Home

Feb 25

Navigating the healthcare system can be daunting, especially when you're worried about a loved one in a hospital or nursing home. Whether it's a parent, spouse, child, or friend, being a strong patient advocate can make a world of difference in their care and overall experience. I saw it firsthand when my father became my mother’s tireless advocate as she trudged through the healthcare system for seven years. In fact, we wrote a book about it called The Best Seven Years of My Life: The Story of an Unlikely Caregiver.

It's about ensuring their voice is heard, their needs are met, and their rights are respected. But how do you become an effective advocate? Here's a guide to help you champion the well-being of your loved one:

1. Understand the Patient's Needs and Wishes:

Communication is Key: Talk to the patient regularly, even if they seem unable to communicate fully. Look for non-verbal cues, like facial expressions or body language. If possible, involve them in decision-making as much as they can.
Know Their History: Be familiar with their medical history, including past illnesses, surgeries, medications, allergies, and any advance directives like a living will or power of attorney. Keep an ongoing list – on paper or electronically. This information is crucial for healthcare providers.
Document Everything: Keep a detailed record of conversations with doctors, nurses, and other staff. Note down diagnoses, treatments, medications, test results, and any concerns you have. This log will be invaluable for tracking progress and ensuring consistency in care.

2. Build Relationships with the Healthcare Team:

Be Respectful and Approachable: Even when you're frustrated, maintain a respectful and positive attitude. Building rapport with the staff will make them more likely to listen to your concerns and work with you. Remember, they have hard and stressful lives too.

Ask Questions: Don't hesitate to ask questions, even if you think they might be "silly." Understanding the medical jargon and treatment plans is essential for effective advocacy. If a doctor or nurse uses terms you don't understand, ask them to explain it in simpler terms.
Attend Rounds and Meetings: If possible, attend doctor's rounds and care plan meetings. This allows you to hear firsthand what's being discussed and to voice your concerns or ask questions directly to the team.

3. Be Present and Involved:

Visit Regularly: Frequent visits are crucial, especially in nursing homes. This allows you to observe the care your loved one is receiving and to identify any potential problems.

Be Their Eyes and Ears: Pay attention to the details of their care. Are they clean and comfortable? Are they getting their medications on time? Are they eating and drinking adequately? Are they engaged in any activities?
Speak Up: If you see something that concerns you, don't be afraid to speak up. Bring your concerns to the attention of the appropriate staff member, whether it's a nurse, doctor, or administrator.

4. Know Your Rights and Resources:

Patient Rights: Familiarize yourself with patient rights, including the right to informed consent, the right to refuse treatment, and the right to privacy.
Advocacy Organizations: There are many organizations that can provide support and resources for patient advocates. Look for local or national organizations that can offer guidance and assistance.
Ombudsman Program: Nursing homes are required to have an ombudsman program, which is a resource for residents and their families to address concerns and resolve complaints.

5. Self-Care is Essential:

Advocacy can be demanding: It's important to take care of yourself, too. Get enough rest, eat healthy meals, and engage in activities that you enjoy.
Seek Support: Don't be afraid to ask for help from family, friends, or support groups. Talking to others who understand what you're going through can be incredibly helpful.

Being a patient advocate is a challenging but incredibly rewarding role. By being informed, assertive, and compassionate, you can make a significant difference in the life of your loved one and ensure they receive the best possible care. Remember, you are their voice, their champion, and their advocate.